Autism Cymru
Autism Cymru was "Wales' national charity for autism" with offices in Cardiff, Wrexham, and Aberystwyth. The organization was established by practitioners and collaborates with Wales Autism Research Centre, a research institute within Cardiff University. They also work with the Welsh government, Autism Speaks and Autism Initiatives UK to affect the service delivery to people on the autism spectrum to establish public policy that will better meet the needs of the autistic community in Wales. They also wish to create best practices that may be used anywhere in the world.
History
The charity was founded in 2001 "to improve the lives of people in Wales with an autistic spectrum disorder and their families" by influencing major policy change, research and practice through education and training, research, awareness raising and collaborative efforts with other organizations. Start-up funding for the organization was provided by Dame Stephanie Shirley's The Shirley Foundation.It was this charity which first created the concept of a government led national autism strategy, presenting the concept to Ministers in the Welsh Government in 2001. The Minister for Health and Social Services in Wales then announced on 4 December 2002 that the Welsh Government would develop the world's first national autism strategy in partnership with Autism Cymru. The CEO of Autism Cymru, Hugh Morgan OBE, chaired the development of the national autism strategy in Wales between 2003-2007. They then partnered with the Welsh Assembly Government to have it implemented, with Hugh Morgan seconded from the Charity to 'drive forward the implementation' from 2008-2011. It also initiated and brought together the partnership including Autistica, the Welsh Government and Autism Initiatives to about the Cardiff University department of psychology's Wales Autism Research Centre with the first named professorial chair in autism in Britain and the development of the Wales Autism Research Centre. Another first, Autism Cymru created the world's first national web-based information service of AWARES.org for autistic people and their families. Since then, Autism Cymru's innovative approach to strategically influencing government been a model for charities in other countries, especially in Northern Ireland and Scotland where national autism strategies have also been developed recently.
As a founder member of the Celtic Nations Autism Partnership, it worked closely with its partner organizations, including Scottish Autism, Autism Northern Ireland, and the Irish Society for Autism. On a larger scale, Autism Cymru works with organizations outside of the UK such as Autisme-Europe and ICare4Autism in the USA. On 6 November 2012, Autism Cymru spearheaded a major event and call in the European Parliament for the development of a European Strategy for Autism, alongside members of the Celtic Nations Autism Partnership and Autisme-Europe hosted by Welsh MEP, Dr Kay Swinburne.
Most of the £9million in additional Welsh Government funding since 2008-9 gained for autism through the Welsh autism strategy has gone to fund local infrastructure for service delivery and research programmes largely in the public sector.
Autism Cymru had held the Wales Autism International Conference in Cardiff 2004; speakers have included Dr Tony Attwood, Professor Christopher Gillberg, Professor Rita Jordan, Dr Temple Grandin, Dr Lorna Wing and Professor Digby Tantam. Past speakers also include Elizabeth Attfield, Mark Barrett, Danny Beath, Autism Cymru's Deputy Chief Executive Maggie Bowen, Colette Drift, Lynn Plimley, Hilary Kanaris, and Ros Blackburn. The charity had sponsored the annual AWARES on-line conference for autism since 2006. The Attention Card programme was developed with Welsh emergency services and is being used by the police forces in Wales and during 2012 has been extended to other emergency services including a national approach to the Welsh Ambulance Services Trust.
Autism Cymru was made Channel S4C's "Charity of the Year"; in 2003 was runner up in the UK Charity Awards for Children and Young People and in 2004 was Highly Commended in the Charity Awards.
Vision
Autism Cymru's vision statement was:Autism Cymru is committed at promoting its services and activities on both national and local scale by focusing approaches on person oriented services to ensure each person in Wales gets the proper diagnosis, education, services, housing, independent living and employment opportunities by working strategically and collaboratively with multidisciplinary partners which include: other research, education, medical and housing organizations, as well as employment and service companies.
People
Patrons and chair
The original funding for Autism Cymru was provided in the 1990s by president Dame Stephanie Shirley's The Shirley Foundation, which is one of the top 50 grant-giving foundations in the United Kingdom. The charity's President is Dame Stephanie Shirley and patron is Lord Dafydd Wigley. The chairperson is Professor Bill Fraser CBE.Staff
Hugh Morgan OBE, FRSA, was formerly the first CEO of Autism West Midlands, working with them from 1988-2001, before becoming the founder CEO of Autism Cymru in 2001. He was the author of several books on autism including Adults with Autism: A Guide to Theory and Practice, Cambridge University Press 1996,. Maggie Bowen is the Deputy CEO. The charity has no administrative staff; its trustees and staff have worked extensively with people on the autism spectrum and their families.Collaborators
Together with many other national and regional autism organizations, Autism Cymru provided a person-centered services approach through training, assessments, policies, and procedures. Through collaboration, such as with Autism Initiatives who have an infrastructure and adequate staff resources, they are able to support current and future initiatives.Membership
Membership for individuals was free and could be obtained by applying online through the official website.Autism Cymru activities
Autism Cymru's activities included awareness development, collaboration with other organizations to realize their vision, participation in research and enhancement of educational opportunities. It worked with partners, such as Autism Initiatives and Wales Autism Research Centre, who had congruent objectives regarding training, awareness building, service and research.Awareness
It sponsored Holly's Ball and Emily's Ball, events set up by the Holly and Emily's mothers to raise awareness about autism. It also sought to raise funds for the National Autistic Society and Autism Cymru, while celebrating World Autism Awareness Day.Other organizations
Autism Cymru was a founder member of the Celtic Nations Autism Partnership, which was launched in collaboration with Autism Northern Ireland, Irish Society for Autism and the Scottish Autism in 2006/7; is a member of Autisme-Europe and had collaborations with others including Autism Initiatives and with Mudiad Ysgolian Meithrin.Governmental and justice organizations
Governmental and justice organizations that Autism Cymru collaborated with included: local health boards and authorities, all four Welsh Police Forces, and the Wales Ambulance Service Trust on the Emergency Services ASD Attention Card Scheme and training, and most powerfully, work with the Welsh Assembly Government. Their national AWARES website, when launched in 2002 was believed to have been "the first national resource website of its kind in the world".Research
Research activities included founding the partnership with Cardiff University and Autistica to create the Wales Autism Research Centre; and collaborations with Bro Morgannwg NHS Trust, S4C and other benefactors and Welsh universities. In 2004, Autism Cymru commenced conducting on-line international conferences on autism featuring many of the leading world figures on autism.Education
Autistic Cymru manages the website for AWARES - the All Wales Autism Resource, which provides information for Welsh and English speaking autistic people in Wales and also runs the annual world on-line conference. Hugh Morgan was quoted in 2002 by the BBC as having said: "AWARES is the start of a journey to create the largest online autism community in the country." The inclusive schools and autism training and research programme received also endorsement from education minister Jane Davidson of the Welsh Assembly Government in 2006; over 500 schools across Wales have participated in the programme since 2006. Autism Cymru has also run national schools forums in Wales since 2004.Training and employment
Autism Cymru collaborated with The Irish Society for Autism on the 2009-12 European-funded Deis Cyfle, a project that receives some of its monies from the European Regional Development Fund. The project was launched on Monday 10 May 2010 and provides opportunities for people with autism in education and employment. It had served over 5,700 people across Wales and Ireland.Seminars
Adam Feinstein from AWARES ran a series of monthly one-day online seminars with leading figures from the world of autism. The online conferences were hosted by Autism Cymru. The seminars help raise awareness of autism by inviting noted guest speakers and experts to address issues and answer questions. Guests have included Carol Gray, President of The Gray Center for Social Learning and Understanding, and Professor Gary B. Mesibov, one of the world's leading authorities on topics related to autistic children and adults' education issues.Autism Cymru ran a series of seminars on various locations with guest speakers addressing autism issues. Past speakers including Donna Williams, a person diagnosed with autism, a sociologist and qualified teacher and the author of nine published books.